Disclaimer: The opinions expressed in this blog are entirely our own and not necessarily those of our employer or any other occupational therapist.
Showing posts with label occupational deprivation. Show all posts
Showing posts with label occupational deprivation. Show all posts

Friday, 7 February 2014

Of dancing and the importance of acceptance....

Following an earlier post I wrote back in 2012 about Gareth Malone and his choirs and the link between engagement in occupation and wellbeing (http://frederickroad.blogspot.co.uk/2012/10/occupation-singing-and-gareth-malone.html) I have recently had occasion to consider a similar thing in relation to dancing.
Wayne Sleep, an award winning ballet dancer, trained at the Royal Ballet School in the UK and well known for his cross over into popular culture (and of course that dance with Princess Diana), has started a new 'reality tv' show where he is bringing 18 plus-size amateur ballerinas together to perform Swan Lake. His approach seems to be one of battling the stereotype of the profession - something he has done throughout his career, constantly being told he was too short to be a successful dancer.   Now he is challenging the stereotype body shape and fighting back “just because you’re big in weight or width doesn’t mean you can’t dance” (although patronising asides such as "they are having a go which is the main thing" doesn't necessarily help the cause).

In a culture that increasingly judges people on their looks and shape, the world of ballet is possibly
one of the most forceful (apart from modelling perhaps) in preventing people from engaging in an occupation they love - whether that be for leisure or for chosen vocation - a situation that we as occupational therapists would recognise as occupational deprivation : " A state of prolonged preclusion from engagement in occupations of necessity or meaning due to factors outside the control of the individual" (Christiansen & Townsend 2004 cited in ENOTHE 2004).

As occupational therapists we consider occupation in terms of form and performance. Form is defined by Nelson (1988) as a 'pre-existing structure that elicits and guides subsequent human performance' (p634) and is made up of the physical and the socio-cultural dimensions. The form in the case of ballet dancing could be:
a) Physical: the dance steps, the costumes, the place in which dancing happens.
b) Socio-cultural: the stereotypes given by the community of professional dancers, the stereotype given by the wider community, one of the participants demonstrates this by stating "I didn't fit tjhe mold"

Wayne, by making this programme is challenging the socio-cultural aspect of the form. By changing the form he is attempting to engage those who have previously been excluded and I will be interested to see how this progresses.

What was significant was the effect this potential to engage is having on the participants. In his early career, Wayne was often told to stop and told 'no' but this only made him want to engage more demonstrating that his intrinsic motivation and self belief was strong. Some of the participants in the programme were not so able to find this level of self-belief but the pull to engage never went away:
" ballet was my life" and "I lost my dance" which clearly show a sense of self that was connected to dance - and once this was severed then poor self-image and low confidence ensued. This was highlighted by comments following the audition process - a process that was rigorous and was rather beautiful to watch the joy exhibited alongside unexpected grace and musicality (my own preconceptions of stereotype perhaps?).  More than one participant stated that they felt "beautiful" or "pretty" again. Even one that did not get through to the final troupe was full of confidence - "I can go home and be proud of myself".

Just goes to show how important it is that, as occupational therapists,  we should be led by the individual in what empowers them, what enables them to gain intrinsic motivation, self-identity and a sense of worth - despite what others may think - whilst acknowledging the challenge to be had in subverting the form.

I wait for the second episode and look forward to seeing how the troupe progress.
A state of prolonged preclusion from engagement in occupations of necessity or meaning due to factors outside the control of an individual, such as through geographic isolation, incarceration or disability.  (Christiansen and Townsend 2004, cited in ENOTHE 2004) - See more at: http://www.cot.co.uk/standards-ethics/key-terms#sthash.iLX948M0.dpufA
A sense that one’s occupations are meaningless and unfulfilling, typically associated with feelings of powerlessness to alter the situation. (Hagedorn 2001, cited in ENOTHE 2004) - See more at: http://www.cot.co.uk/standards-ethics/key-terms#sthash.iLX948M0.dpuf
A sense that one’s occupations are meaningless and unfulfilling, typically associated with feelings of powerlessness to alter the situation. (Hagedorn 2001, cited in ENOTHE 2004) - See more at: http://www.cot.co.uk/standards-ethics/key-terms#sthash.iLX948M0.dpuf
A sense that one’s occupations are meaningless and unfulfilling, typically associated with feelings of powerlessness to alter the situation. (Hagedorn 2001, cited in ENOTHE 2004) - See more at: http://www.cot.co.uk/standards-ethics/key-terms#sthash.iLX948M0.dpuf
A sense that one’s occupations are meaningless and unfulfilling, typically associated with feelings of powerlessness to alter the situation. (Hagedorn 2001, cited in ENOTHE 2004) - See more at: http://www.cot.co.uk/standards-ethics/key-terms#sthash.iLX948M0.dpuf
A sense that one’s occupations are meaningless and unfulfilling, typically associated with feelings of powerlessness to alter the situation. (Hagedorn 2001, cited in ENOTHE 2004) - See more at: http://www.cot.co.uk/standards-ethics/key-terms#sthash.iLX948M0.dpuf
A sense that one’s occupations are meaningless and unfulfilling, typically associated with feelings of powerlessness to alter the situation. (Hagedorn 2001, cited in ENOTHE 2004) - See more at: http://www.cot.co.uk/standards-ethics/key-terms#sthash.iLX948M0.dpuf

Saturday, 20 July 2013

Engaging in occupation through adversity.......


Last evening I sat down to watch the Proms at the BBC - a performance of  Rachmaninov's Piano Concerto No 2 - one of my favourite pieces (think - "Brief Encounter" ). The piano soloist was an extraordinary young Japanese pianist Nobuyuki Tsujii, whose blindness is no barrier to his musical talent. In his interview trailer before the performance he explained how he listens for the conductor's breathing in order to reach his cues and work together with the orchestra and uses muscle memory and touch and sound to learn the pieces rather than use Braille. A fantastic performance was given and then followed by an encore of  Liszt’s La Campanella - one of the hardest pieces to play and clearly a bit of well deserved showing off ensued.

 This reminded me of recent stories I had seen on Facebook or on the BBC news that seemed to all form part of a theme. How people continue to engage in meaningful occupations (whether for leisure or productivity) whilst experiencing illness or disability. It often amazes me how people overcome obstacles when they decide they are going to engage in an activity - and how the people around them enable and support them in any way they can by adapting behaviour and/or the environment. By doing this they often challenge the perceptions of others as to what is possible and can act as an inspiration to others by being their own occupational therapist.

Please see the videos below for some truly inspirational stories and ones that have great resonance for occupational therapists..........................



18 years ago a slight lapse in concentration crushed Pascale's dreams of surfing. With the help of a family friend and a roll of duct tape; she can now call herself a surfer.











 A Son asked his father, "Dad, will you take part in a marathon with me?" The father who, despite having a heart condition, says "Yes". They went on to complete the marathon together. Father and son went on to join other marathons. The father always saying "Yes" to his son's request of going through the race together. One day, the son asked his father, "Dad, let's join the Ironman together."

To which, his father said "Yes".

For those who don't know, Ironman is the toughest triathlon ever. The race encompasses three endurance events of a 2.4 mile (3.86 kilometer) ocean swim, followed by a 112 mile (180.2 kilometer) bike ride and ending with a 26.2 mile (42.195 kilometer) marathon along the coast of the Big Island.

Father and son went on to complete the race together!




An Isle of Wight teenager with cerebral palsy has completed a solo journey across the channel.
Natasha Lambert, 16, was born with atheroid cerebral palsy which affects her limbs and speech.
Her 21ft-long (6.4m) boat, Miss Isle Too, has been adapted by her father, Gary, and allows her to steer by sucking and blowing into a tube.







I wonder if these stories say as much about the families who support them as it does about the person themselves. Might this mean that those individuals experiencing occupational deprivation through disability and/or illness who do not have supportive family may be disadvantaged? It would be great to hear of your experiences if you would like to share. Thankyou.

Friday, 24 September 2010

The Young Ones.................

I've been trying to find the time to share with you my enthusiasm for a recent BBC series The Young Ones (BBC iplayer - 4 episodes I think available to view until 12th Oct 2010 -no, not the 80's comedy of "right on" students - although I was an avid fan!).
This was a short series that restaged research conducted in the 1980s. Professor Ellen Langer has many articles and books exploring the theory of turning back time and comments at the beginning of the programme that " our minds accept the labels of ageing. Freeing ourselves from that state of mind can turn back the clock". This series took back 6 celebrities in their 70s and 80s  to 1975 for one week, a time when they considered themselves in their prime. Their week was entirely 1975 - decor, tv, food etc. and were offered constant physical and mental activity and socialisation.
The suggestion being that there is a cultural expectation of "elderly" and "old" that is a state of mind rather than a reality (in some cases). Using words such as "forgetful" and "wise" can create a mindset that impacts on how the individual may thinks and see themselves and thus impact on behaviour and performance (episode 4 goes into this in detail). One celebrity began the programme by saying that he used to have dogs - but "I'm now too old to look after them",(he is now thinking of getting another dog!) another believed that having a number of strokes in the past 18 months prevented her from her beloved hobby of painting. Through the week the celebrities were confronted with tasks that they were expected to engage with - some of these were returning to previously meaningful occupations including performing at the London Palladium  (a dancer) and returning to a busy newspaper office (editor). By the end of the week, all had made physical and cognitive function improvement. Here are some of the stories:

Dickie: was convinced at the beginning that he had a poor memory. Since experiencing a stroke he lost confidence and was scared of going out "since retirement my world has shrunk, now I feel alive again". His memory at the end rated as higher than average. " I feel a different man" and a friend commented "he'd lost an interesting life - that's waht's been ressurected"

Derek: was inclined to say "I can't do it" to anything that he was asked to do believing "I'm 80 and I don't have to do anything anymore". What was demonstrated that he was often saying "I can't do it" as he was actually performing the said task! His experience of the house was that talking to 5 people at a time was something he had not done for years "it reminded me of when I was editor and a lovely feeling to go back - something you don't think about very often" and "start thinking in a more lively vigorous way to recapture how you were years ago".

Liz: was very good at getting others to do things for her in the beginning, she arrived in a wheelchair after having a number of strokes over the last 18 months. By the end of the week she was mostly walking with one stick - and at times no stick- and her daughter commented how strange but good it felt to be walking beside her mother again. Liz has also taken up painting again "try to find something that is not just there to pass the time, but is actually constructive and has something to do with your former life. Find something to do which satisfies you, find something to live for each day, to go out for and to dress up for - it's the answer" (Spoken like an OT!!!)

Sylvia: was in constant pain from her back at the beginning, but aby the end was running, touching her toes and looked so much younger.


So, how was this achieved? 
Well, to use our professional language they were possibly experiencing the impact of occupational alienation and occupational deprivation which were negated by:

  • engaging in meaningful activity
  • introducing peer support and competition (friendly)
  • providing structure
  • experiencing worth and purpose


One might question whether these things would be enough without the 1975 environment. In fact Sylvia questioned the correlation between the impact on well being and the trip back in time. Prof Langer explained that this was based on the Placebo effect, it was a way of getting people to be where they felt vital and not being stopped by a mindset - which today's environment encourages. It reminds them that thay had been vital and they gave it up! "Now I feel if I want a cup of tea...I can go and get it"

Of course one might suggest that these were celebrities - able to perform!